allyship, aromanticism, asexuality, disability, faith, Mental health, neurodivergence, queer, resources

Naming

As you might assume from my content on this site, I carry a lot of labels. Some are less well-known than others, and some carry inaccurate connotations. Some I am constantly working for greater awareness of, and others I keep quieter about. These labels have been immensely helpful for me, whether they are as specific as a microlabel on the spectrum of aromantic and asexual identity or as broad as the unifying and nebulous umbrella terms that I’m not sure where all I fit within.

Naming is important to self-concept and acceptance of our identity, but there are equally important stages that we move through before and after we first say, “Hi, my name is ____ and I’m ____.” These aren’t strictly linear, but they are numbered for the sake of organization:

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disability, essays, neurodivergence

It is for freedom we have been set free

Content warning for child abuse story. Start at 3:24 if this is a trigger for you

First, it is a great feeling to be able to understand and process every word from a speaker without needing the captions. That almost never happens. I feel like I actually processed every word!

Aside from speaking skills, this was so healing. And not only as someone with APD but the heart behind it holds several jewels I think we all need to learn from. Dr. Alexander approaches her work in a way that feels more like ministry than many “ministers” we hear about online.

“I know what it feels like … to be imprisoned, but I also know how it feels to be set free.”

This is the crux of it, right from the start. Those of us deconstructing or evolving or just plain leaving conservative and evangelical church traditions know that feeling of being “set aside and dismissed.” Queer people who have lived in the closet know the feeling of being restrained inside that metaphor, of being not only hidden but trapped. Neurodivergent and mentally ill and disabled people know this prison that is their own mind and body. So many of us who resonate with a name like “Invisible Cake Society” have had to work through our traumas while it felt like no one could perceive us and no one would believe us.

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disability, Mental health, Poetry

The Unnamed.

Photo by SHVETS production on Pexels.com

This is a prayer for the mystery case

The pain with no clear cause
The symptoms that don’t match
The lab test that comes back clear

The numbers say you’re fit as a fiddle
So why is your body screaming
As you beg the white coats to care

This is a prayer for the ones unsure
If they deserve to belong here
Disabled. As if it’s a title you earn

This is for the ones who have a hard time
defending themselves against the “just”s
Because maybe this one will be right

And it’s less hope and more desperation
As you swipe your card and try it.
You’re running out of time

You’re running out of your mind
Trying to figure out how to survive
In a new normal each day

And when people ask, you say sure!
Because it still doesn’t occur to you
You’ll be gritting your teeth the day of the event.

But you don’t have a name yet
Or ever. Maybe. Maybe you won’t know
What to tell people when you say sorry

And they don’t understand fully
Because yesterday you seemed fine
And it’s hard to describe what you feel

The symptom list inconclusive
Is hard to describe without
A name for what’s within

This is a prayer for our minds and hearts
and stomachs as they churn
with grief and anxiety and fear

For the choices we make with no guidance
For the questions with no answers
For the mystery that leaves us without

Community. Support. Resources. Research. Plans. Treatment. Hope.

I pray you find a doctor with undying curiosity
I pray you find empathy in a nurse’s needle
I pray you find a treatment that works

I pray your insurance covers you with no fuss
Like a blanket on a soft couch
With all you need within reach.

I pray you hang on to tomorrow
Breathe in and out, do what you can,
And in time you find a name.